Friday, September 4, 2020

 2020 - The Year That Keeps on Giving


AUTHOR'S NOTE: Heretofore, this blog has been about my travel adventures with my partner Doug. Beginning with this piece, however, I will be blogging about a different sort of adventure -- fighting cancer, As Seen By Susan. From all that I have read, it will be an adventure of a lifetime, but not in the fun sort of way. In the end, I hope to be able to go back to blogging about far away places and trips we have scheduled for 2021 including Egypt, Jordan and Alexandria. Stay tuned.

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Looking back, I didn't think much about it at the time that I was sick on New Year's Eve and January 1 of this year. I just knew that I was disappointed to miss our tour of the ghats along the Ganges in Varanasi that was supposed to be a highlight of our trip to India. But I recovered, and we finished our Heart of India tour as well as our five-day extension trip to the state of Kerala in southern India.  Then we began our journey home in the wee hours of January 7, arriving back in Walla Walla by mid afternoon on January 8, very tired and with a lingering cough and an eye irritation, but home. 

By February rumblings of the Coronavirus had me wondering if I my cough was symptomatic of something more serious, but with no fever or other symptoms, the doctors at Urgent Care didn't seem concerned. And as my  symptoms abated, COVID-19 arrived in the states and with it the new normal of stay-at-home orders, masking, self-isolation, and quarantine.  

It was also during the first few months of isolation that I had my follow up appointment with my surgeon who had performed my hemorrhoidectomy the previous fall. At that time, she had removed and had biopsied a lesion that was found during a prior colonoscopy. The pathology report came back as negative for cancer, which was a relief. However, at my six-month checkup she must have seen something suspicious, as she referred me to a colo-rectal specialist in Spokane. 

Covid-19 restrictions plus Doug's rescheduled hip replacement surgery in June put my anaoscopy procedure off until August 13. And then ten days later I received the results: I have anal cancer. 

The diagnosis took me by surprise. I have always thought of myself as "healthy and husky," just as my childhood pediatrician Dr. Mason had described me after one of my many summer camp physicals. Also, there is no history of cancer in my family, and I have led a mostly healthy life being a non-smoker and a light drinker. 

Nevertheless, I have cancer. How I got it is now not as important as how I am going to get rid of it. Since I don't see my new doctors at the Cancer Center here in Walla walla until mid-September, I've been busy reading and developing my background knowledge of the disease and its treatment. Believe me, it's not for the faint of heart. But as a result of my research, I am also putting together my support team including a nutritionist, a social worker/counselor, and my patient advocate who can ask questions and take notes when my brain might be otherwise bogged down in the emotion and physical distress of fighting this disease. 

Plus there's my partner Doug, who will be my closest emotional support person. I've been at his side for several health events, so I guess now it's his turn. 

So it seems 2020 just keeps on giving. As Covid-19 keeps us trapped inside our homes, fires rage across the west, and hurricanes spin off the oceans into the coastal cities and across neighboring states; as social and racial injustice is protested in small towns such as Walla Walla and big cities like Portland, Seattle, Washington D.C. and others across our country;  as students and teachers return to school in a variety of ways never experienced before; and as our country fights to preserve our democracy and its Constitution, I will begin the battle of my life.

2020, you may have thrown me a curve ball, but I am not out yet. In fact, I have just begun to fight. 



22 comments:

  1. Susan, I, for one, will be thinking of you daily - only positive thoughts for healing, recovery and keeping your sense of humor. If I can ever be of help to you do t hesitate to contact me. Your FB group has truly helped me over my first ever depression.

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    1. Thank you for your positive thoughts. It warms my heart to know that Name One Good Thing has been a Good thing for you.--Susan

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  2. From the time I "met" you through One Good Thing, Susan, I have been impressed by your compassion and caring about others. You always seem to have the right words for someone as well as a sense of humor. Please know my thoughts will be with you, I will affirm that you will receive the best of care, the best of outcomes, and the loving support of your friends.

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    1. Thank you for your thoughtful words and support. It means a lot to me.--Susan

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  3. Since I met you as we stood between Cabin 10 and North (as I recall) in 196?, I have always thought of you as a Four Way Lodge sister, and I'm with you on this journey - more of a climb than you had planned for 2020, but one that you are approaching with your signature positive attitude and strength. This might be the best time to be home focused on wellness (travel limitations because of COVID), and at least you know about the cancer and can get to work on eliminating it (ahem). From hundreds of miles away, I'm smiling when I think of you. And wishing you the best!

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    1. Ah yes! Summer camp is the most influential experience of my life. Everything I needed to know, I learned at summer camp which includes Four Way as well as Huntingdon on Walloon Lake before that. Im anxious to get this journey started and will know more next week when I meet with my oncologists. Thanks for your kind words and support.

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  4. We are all on your support team too Susan! I'm grateful to know you and will be following your journey from Michigan. There will be many challenges but take it one day at a time.

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    1. Thanks Margaret, I appreciate your support no matter how many miles.

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  5. You are a strong, amazing, creative, powerful, and determined woman with a deep and wide swath of support. I'm sorry that you have to deal with this. In the process of your recovery, please be ever so respectful and kind to yourself: indulgent when you need to be, cranky when you want to be, feisty when you have the energy, creative when the spirit moves you, peaceful when you you feel the flow, funny whenever you damn well want to be! Know that you are being held. XO

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    1. Sharon, Thank you so much for your glowing words of support. I love the idea that I am being held by others. It's hard for me to relinquish control, but it feels comforting to know that I have so much support. Thank you--Susan

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  6. Thank you for so bravely and articulately sharing the details of your situation, and your intentions for what may come. I am grateful for the intimacy afforded to me as a FWL summer sister, now present 50+ years later. Please know that I will be ever holding you in my heart for best possible outcomes - a full recovery and return to your beloved activities. May God bless! ❤☮��

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    1. Carrie, Thank you for your kind words and support. I appreciate it more than you know.- Susan

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  7. Tough news for sure but it’s wonderful to hear how your preparations. Research, common sense and a good network are the way to. I’ll be wit you on the virtual front as you proceed and sending healing energy and positive thoughts every day.

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    1. Mary, Thank you for your virtual support and positive energy. I can use all the help I can muster.-Susan

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  8. I will follow your journey from afar, Susan.

    I know you will fight a good fight.

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  9. You are a badass fighter and I’m sure you will succeed against this nasty foe.
    May the force be with you! Positive vibes and prayers to you!
    Thank you for sharing

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    1. Thanks! Thanks for your support. I'll be my best warrior self to beat this bully. -Susan

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  10. Blessings and hugs������������

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  11. It must be hard having to wait for that next appointment. You are in my prayers.

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    1. Yes, so far it's the hardest part. But I'm sure it will get harder during treatment. I meet with my oncologists for the first time next week. Then it will be all systems go! Thanks for your prayers. - Susan

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  12. I feel as if I’m sitting across from you having a heart to heart conversation each segment of your blog. You are wise beyond your years and so compassionate about sharing the highlights and the fear. I can’t imagine what you’re going through but I hope you know how much people care. We are all pulling for you Susan. ❤️

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